Well this is embarrassing. Over a year has passed since I have updated this blog and so much has happened since April 2015..........let me see if I can catch everyone up!
Camping: We had a great time last summer/fall with our travel trailer and enjoyed camping with friends in beautiful Colorado! Kinley loved the nightly campfires, smores, and having our dog Maddie sleep with us in the camper.
Health: Our main challenge this past year has been to try new medications in an effort to improve her Parkinsonism symptoms i.e. tremors in hands and arms. She has added two meds and while we have seen some positive change in symptoms we had hoped for more consistent results. On a more encouraging note she recently has been able to stop taking her lone seizure medication and so far there have been no signs of any seizure activity. Yea! We also recently entered into a family DNA exome sequencing test program so we are excited to see if this yields any new information regarding Kinley's original diagnosis or treatment. They took blood samples from all three of us and we should get the results back in late June or early July. I'm not sure if a flu shot or a blood draw is #1 on Kinley's Things I Hate To Do list but it has to be one of those. Brushing teeth and turning down the sound on her I-pad are top contenders too but I digress.
School: Kinley is wrapping up her sophomore year at Chaparral High School next week. Holy cow this cannot be happening! Where did my pre-schooler go?? She has continued to thrive socially while working hard to achieve her academic and physical goals set out in her IEP. The staff and students at Chap have been amazing and she is a proud Wolverine!!
The Future: Our family has decided to move back to Wichita, KS this summer to be close to family and life long friends again. Kinley is sad to be leaving her friends here in Colorado but excited about reuniting with old classmates in the Maize, KS school district and also being in the same city as her grandparents. We are looking forward to house hunting there soon and also re-introducing ourselves to humidity and wind. Ha!
See you soon Wichita......cheers!
