One of the reasons we moved to Denver in July 2011 was to live in a city with a world class childrens hospital. We have been to Children's Hospital in Aurora several times since our move and our most recent visit was to meet with a new team of neurologists. We had previously been to the MDA Muscle Clinic and Metabolic Clinic at Children’s and were really impressed with everyone that examined Kinley and talked to us about her condition. This new team is part of the Mitochondrial Clinic which is a specialty clinic that focuses specifically on mitochondrial disease patients so we were excited to hear what they had to say about Kinley. Dr. Abbie Collins in particular was amazing with Kinley and gave her the most thorough neurological exam I believe she has ever undergone since the onset of her symptoms in 2002. We left the appointment with a much better understanding of the three primary physical issues that Kinley is dealing with (Parkinsonism, Myoclonus, and Ataxia) as well as learning about some new strategies that could possibly help Kinley improve her quality of life. During this visit, as well as a recent trip to her pediatrician, we learned that Kinley has gained 20 pounds over the past year which is awesome! In spite of her neurological issues her overall health has been very good and for that we are extremely grateful. We still don’t know what the long term prognosis is for Kinley but we are confident that we have some of the brightest minds and compassionate hearts in pediatric neurology on our team and that is a great feeling.
Children's Hospital Colorado once again has been ranked among the nation's top children's hospitals in the U.S. News & World Report 2012-13 Best Children's Hospitals rankings, now available online at www.usnews.com/childrenshospitals. Children's Colorado has been ranked in all ten specialties. High rankings in a minimum of three specialties qualified Children's Hospital Colorado for the 2012-13 Best Children's Hospital Honor Roll, a distinction awarded to only 12 children's centers nationwide.
That is so awesome, so glad for Kinley and both of you even tho we miss you here in Wichita! We hope to get out that way and be able to see you guys. Thom & Rox
ReplyDeleteJohn, I'm so glad to hear that Kinley has the best medical team available to her. It sounds very promising that you'll get good information and a team of caretakers who can help her be the best she can be. Blessings on all of you - give her a big hug from me! Love to you!
ReplyDelete